r/schizophrenia • u/bluekleio • 3h ago
r/schizophrenia • u/Empty_Insight • 2d ago
Announcement [Mod Post] Subreddit Discussion - December
Hey everybody, it's the douchebag librarian, back at it with our monthly updates. Reminder that this is not a bot post, it was written by me, an actual human, over the span of this month.
As per the routine, please check out our Community Notices page for updates from the previous month. We've also got the Creator Wiki for our subreddit artists, let us know if you want in- or just check out what we already have up!
Research
Obviously, our most breaking development is still the approval and use of Cobenfy. Nothing recently seems to come close to that in terms of impact.
Currently active studies for the last month:
- From the clever folks at Oxford (who know all there is to be known), we have Social Identity in Voice Hearers. [UK Only]
- From Lancaster University, our friend Katie is doing a 'final push' for participants in a study regarding Early Intervention in Psychosis (EIP). (Raffle, potentially paid)
- From the University of Liverpool, we have Resilience in Unpaid Carers of People Experiencing Psychosis.
- From Université de Montréal in Canada, we have a survey on Online Engagement and Mental Health. (Raffle, potentially paid)
- From our friends at UC San Diego, we continue our long tradition with the Empower-3 Study for a new treatment.
- Emraclidine is a medication that- like Cobenfy- works on muscarinic receptors, and does not (directly) affect dopamine. Emraclidine is a positive allosteric modulator at M4, whereas Cobenfy is a full agonist at M1 and M4. Interesting stuff.
There's also clinicaltrials.gov if you're wanting to look for something more location-specific to you. [US Only] Like emraclidine, for example- there's a lot of places running the clinical trials for it.
Rule 6 - Writer's Requests
I did this last month, but I see a lot of people still haven't gotten the memo on that.
We have updated our Rule 6 requirements to make it clear- if somebody comes here and wants to write about a character with schizophrenia, they are to follow the procedure:
- Use Reddit's search function for old threads where people have previously asked for help writing a character.
- Use the Writer's Wiki (including new information since added at the bottom)
- If neither of those things are sufficient, they can then hit us up and ask.
Writer's requests in general are now covered under Rule 6. If you see someone asking for help with writing a schizophrenic character, we have plenty of resources to help them with that very thing- it cuts down on potential nuisance even further.
Rule 10 - Selfie Sunday Update
We've got a little more context here for Selfie Sundays. You may have seen our new disclaimer update for Selfie Sundays... essentially, a selfie is not an invitation for DMs. If the OP is open to DMs, they're free to indicate as such in the comments.
Rule 11 - Private Community Invites
Unfortunately, the cockroach we have stomped on three times now seems to be gearing up for Round 4.
For those not familiar, we have a write-up over the singular most troublesome group we've ever had the misfortune of interacting with on this subreddit. Long story short, there is an extremely toxic Discord group that has been known to create/hijack subreddits to recruit for their server. So far, they have had the subreddits r/CrazyNicePeople, r/MindfulMadness, and r/PsychoticLiterally nuked by Reddit's admins for their misconduct. The most recent prior iteration was PL, and apparently Reddit has automated tools for detecting ban evasion subs- so it was nuked for ban evasion, being a re-do of the original CNP subreddit. (as you can see if you click on the subreddit name)
(Note: If you're up on the current Reddit-wide subreddit drama, you can see Reddit's ban evasion tool nuking subs that are ban evasions of r/gamingmemes in real time lol, it's actually pretty neat to watch)
This new community of theirs, r/psyschoticfriends, seems to have evaded detection by merit of being private. Unfortunately, the group seems to have not learned a single thing about the last three times we did this dance and again decided they were going to try to target r/schizophrenia. Thankfully, Reddit does have direct lines for things like this, so we anticipate that this newest iteration of an old annoyance will be gone fairly soon. I'm under the impressions that the admins have a pretty substantial backlog to clear, but given that they've already banned a community associated with this Discord for ban evasion before, I'm about as certain as I can be that they're going to repeat the process yet again, and add yet another tally to the subreddits shut down by this group.
We learn more every time these folks try (and fail) again. This time, having a direct line to report makes it much easier for us to get it dealt with more swiftly. We're ready to go Round 5, 6, 7, or however many it takes until they get the message, loud and clear, without mistake or exception- r/schizophrenia is off-limits for their games. This only became our problem once they made it our problem, and decided to use our subreddit as their 'hunting grounds'. Had they simply learned their lesson the first few times and left our community alone, I would have just minded my own business.
Many people here have expressed some fatigue in hearing about this- imagine how I feel about it. I really don't enjoy dealing with these chuckleheads on that Discord and their burning, obsessive quest to remain relevant and/or use our subreddit to prey upon individuals they have picked out as 'vulnerable'. I'll update once the subreddit is shut down. I anticipate that now that we have the best tools to handle the issue moving forward, no further updates will be needed after that- it'll be handled before any further warnings may even be necessary.
In the meantime, the subreddit does offer an interesting perspective on how a cult works. Just remember... things are not as they seem there. It's a façade, a veneer, a tool. It all serves the purpose of driving people to that Discord, where they are insulated from any oversight or accountability. That's not what virtuous, honest people do. Something to keep in mind.
If you got an invite, feel free to check it out. If not... please don't message their mods and harass them, ask them to join, anything of that nature. They were quite clear that they only want the people they've selected joining (nothing cult-y about that, eh?) so I politely ask the subreddit to honor their request in that regard. No brigading, no shit-stirring, nada.
Technical Difficulties
So, I'm not exactly sure what the issues Reddit has been having recently is, but if you're experiencing something that is strange or unusual with the Reddit interface you use... that's 'normal.' I know sometimes people here can get bugged out when things aren't quite right, but I think Reddit put out some UI update or something that broke some things. So, if you've been getting some strange errors recently... no, your phone is not bugged, nothing like that, it's just technical difficulties. Glitches, what have you.
The main one I've seen being buggy is flairs, but there are a few other things too. You're not being crazy, that is actually happening.
Keto (Again)
Okay, so... our frustration continues with this Keto stuff.
If you have been living under a rock, then all you really need to know is that the biggest schizo- influencer, who runs a vlog, has gone on a kick on the Keto diet, claiming that it "healed" her schizophrenia and that it is past-tense. This is naturally not how it works, as we all know, and many of us from personal experience- there is no "after" schizophrenia. There are no "cures", there is no "healed", there is remission, which is not guaranteed to be permanent. Take it from someone who has been in remission for 8 years now- I'm not counting my chickens before they hatch.
So, the bullet points:
Using synonyms for "cured" does not somehow negate the sentiment that schizophrenia- a lifelong, incurable illness- has somehow been utterly removed as a factor in one's life. This is not how it works.
Words like "remission" mean things and have definitions. They do not exist merely at the convenience of the user.
There are currently clinical trials underway as we speak evaluating the effectiveness of the Ketogenic diet to treat psychosis. The Keto diet is an extreme diet, and carries significant risk with it. It is not like the Mediterranean diet (which has actually been shown to work to a degree), so it is not some casual affair to commit to a diet like Keto on the chance that it may work based on small trials that did not yield controlled, quality data (or worse, rely on animal models or in vitro studies).
If you are effectively encouraging people to participate in an ongoing study without oversight - that's not how science works. Actual science dictates that we will determine whether or not it works when the data is in- all of it- and not one moment sooner. Attempting to encourage people to join you on this journey that you have touted as some sort of scientifically backed endeavor based on potential is not science- that's quackery, pseudo-science, treating it as a foregone conclusion that the actual scientific data will support your idea before it is ever in.
Treating things like a foregone conclusion is not science, and has had catastrophic results for mental health just in 2024. One such idiotic mistake from a group of researchers likely set back progress on using psychedelics to treat mental illness (esp. PTSD and treat-refractory MDD) years. This is not a trivial thing. If you are biased, you torpedo the inevitable outcome. The way this is being handled- even if Keto does work for psychosis- it will be eviscerated quite thoroughly in the scientific community. We do not treat foregone conclusions as being serious. We don't take "I know it's pseudo-science right now, but the evidence will back that it works, just trust me bro, it'll be actual science soon enough" to be particularly comforting.
All of us mods here are quite tired of this. We will hence be removing anything suggesting Keto is such a "revolutionary treatment" much as we do with other 'cures', like people claiming that Jesus magically healed their schizophrenia. No more special treatment for Keto in that regard. No more exceptions.
People have gotten hurt. This is not a hypothetical. Some of those people- or their family members- have come here to post about it. These are real people, and their misfortune is, likewise, very real.
If you are that dedicated to discussing the Ketogenic diet, we may redirect you to r/Metabolic_Psychiatry because we are tired of talking about it here. We'll have a serious talk about that once the data is in, and not one moment sooner.
Community Feedback
Now, for my favorite part- let's hear from you! Still haven't any requests on special flairs regarding data scraping- but if you want one, drop a comment and I'll make it happen.
It's the holidays (obviously), and the New Year is coming up. Even just here on the subreddit, it has been a pretty wild year... see above. 2025 is right around the corner, and we get to start anew. If you have any thoughts on that, want to share holiday stories, talk about your hopes for the next year, want to give the mods ideas for "festive" things to do to celebrate in a way that is most inclusive, drop a comment!
Any other random questions/comments/concerns that have popped into your head over the last month you'd like us to answer, feel free to let us know what you think. You've got our full attention.
Take care, everybody!
r/schizophrenia • u/Empty_Insight • Nov 12 '24
Resources / Literature Frequently Asked Questions- r/schizophrenia
Welcome to r/schizophrenia!
Our subreddit rules are in the sidebar, we ask that you read and follow them. Feel free to post anything on-topic that does not violate these rules. We have a relatively comprehensive overview of how our rules are applied in reality available on the Rule Clarifications Wiki page.
Many first-time posters to this subreddit are concerned that they might be developing schizophrenia or they are concerned about other people who have- or may have- schizophrenia. We have resources available to answer these questions contained within the comments; if your question is completely answered by the information already given, it will be removed.
Mental health is complex. No symptom of schizophrenia is specific to schizophrenia alone, and there are many more common causes of those symptoms- especially in the prodromal stage. If you are experiencing an emergency, please call your doctor or local emergency services. We have a compendium of Crisis Lines available and may suggest r/SuicideWatch if you are experiencing suicidal thoughts and would like the most prompt attention.
(Credit u/soundandvisions for original post and comments)
Table of Contents
- What is schizophrenia?
- DSM-5: Schizophrenia
- Do you think you may be developing schizophrenia?
- Anxiety about developing schizophrenia (Worried you're "going crazy")?
- Schizophrenic friends, family members, or others you want to help?
- Need help writing a fictional character with schizophrenia?
- Crisis lines and resources for help
- About r/schizophrenia
- Disclaimer
r/schizophrenia • u/Princessfaerygirl • 3h ago
Introduction / New Member 👋 Selfie Sunday drop
galleryr/schizophrenia • u/SeventeenthPlatypus • 7h ago
Selfie It's Sunday again? Already? Time is bizarre.
r/schizophrenia • u/Similar-Ball-8809 • 1h ago
Selfie Selfie Sunday. I went to a hookah bar last night with a friend.
r/schizophrenia • u/Plenty_Start_1757 • 8h ago
Selfie selfie sunday
had my disability physical today, hoping i get it soon
r/schizophrenia • u/patheticgooses • 4h ago
Seeking Support Does it get better?
Literally that's it. Does it ever get better?
r/schizophrenia • u/moniquegouveia • 38m ago
Opinion / Thought / Idea / Discussion What’s your symptoms even when medicated?
I am 33F and newly diagnosed. I'm having visual hallucinations with my eyes closed despite being on medication. (50mg quetiapine)
Can you describe the symptoms you have even while medicated? It's a scary path ahead and I want to learn as much as possible.
Thanks!
r/schizophrenia • u/NoSatisfaction9608 • 48m ago
Introduction / New Member 👋 Introducing myself!
Little about me, I am diagnosed with psychotic depression not schizophrenia, so if I’m not supposed to be here please let me know I’m not trying to invade sacred space for others 🙏. Because I experience daily, pretty nasty auditory hallucinations though so I was hoping people would accept me here. There’s not many places I can talk about what I go through without facing rejection to be honest (my symptoms are too much for a lot of people with depression/anxiety for example) and am just looking for a place where I can be my imperfect self without apologizing for it. Thank you!
r/schizophrenia • u/Fabulous-Sky7819 • 12h ago
Selfie Sunday I feel bad when I'm not high
r/schizophrenia • u/Alternative_Ring_364 • 7h ago
Tobacco / Alcohol / Drugs Has anyone where successfully quitted smoking?
Im a very heavy smoker, around 50 a day. Everytime I try and quit I can not sleep at all and I mean not at all.. even though I take 550mg of clozapine and 2mg of Clonazepam.
What are your experiences? Thankyou.
r/schizophrenia • u/ICannotSayThisOnMain • 17h ago
Meme These pajama pants I got for Christmas feel pointed
I wouldn’t call it “brief”
(My family doesn’t actually know I’m schizo but my paranoia makes me feel like it’s a slight haha)
r/schizophrenia • u/paddedroomdweller • 21h ago
Progress / Good News ☀️ Today I felt a huge wave of content and calmness
Literally never feel this sense of euphoria, but today is different. Today I
r/schizophrenia • u/capykita • 13h ago
Seeking Support Anyone else struggle with grandiose delusions?
Got kicked from a couple reddit communities when I was in a grandiose delusion where I thought I knew the answers to everything 😭 it's so hard because it feels so real. I'm on medication now and it's so hard to look back on
r/schizophrenia • u/01Quagmire • 10m ago
Opinion / Thought / Idea / Discussion How many antipsychotics do you take at once?
I am worried about my brother. He is taking Clozapine and Aripiprazole but still have symptoms (IMO things got worse after adding aripiprazole). The psychiatrist wishes to add quetiapine to the current regimen without replacing Aripiprazole, at least for the first 20-30 days, after which he will taper and replace aripiprazole based on the response. I asked if it's safe to administer three different compounds concurrently and he said it's okay.
r/schizophrenia • u/Blasphemous1569 • 14h ago
Opinion / Thought / Idea / Discussion How do you sleep at night?
Do the voices make it harder for you to sleep? I'm asking because even a little noise can wake me up, let alone talking, no matter real or not. If they make it harder, how do you deal with them, if there is a way to do so?
Sorry if this sounds disrespectful, I just wondered about this for quite a few time. Also, I'm not schizophrenic.
r/schizophrenia • u/Empty_Insight • 7h ago
Opinion / Thought / Idea / Discussion For the Crusty Old Farts (Schizophrenia Veterans)
Hey everybody, a lot of the subreddit revolves around people who are newly diagnosed- they come here and are typically the most active for a while, then lose steam or leave when they no longer feel the subreddit serves their benefit... which is fine, we intend for r/schizophrenia to primarily serve the function of a library and/or landing pad to help people connect with meaningful, long-term support. Maybe learn a thing or two in the process.
I've had schizophrenia for 19 years myself, and I know I'm very far from the oldest one here in "schizo years." It seems that most of us who have made it to the 'teenage years' of schizophrenia have had at least some periods of remission, and mine has lasted 8 years... so far. Not counting those chickens before they hatch.
The community is made up of a very diverse userbase, from people with PhDs/MDs/JDs to those who are currently homeless teenagers. Those of us who are older tend to not be asking for support as much as those who are younger in schizo years, and don't post as much.
I just wanted to make a post and ask... how y'all doing, fellow old farts? Anything in particular you'd like to share? Any unique insights you've learned over the years to help manage your symptoms that you don't see talked about here as often as you'd like?
For me, I have DSPD. Sleep has always been an issue. Just getting my sleep hygiene sorted out (and a good mattress) made an entire world of difference. I learned early on that you don't cut corners on sleep-related activities lol
I guess as a shout-out to the military veterans here with SZ, I might offer yet another topic- I know the VA has an ungodly number of programs to assist veterans with any number of things. Everybody knows about VA disability and the VA home loans, but there's a lot more than that. Housing assistance, programs to prevent homelessness, outpatient rehab, intensive home-based therapy, etc... and they say we don't take good enough care of our veterans lol. The VA has so many programs that it gets genuinely confusing navigating them... the phrase "suffers from success" is applicable here, I would think.
To those of you who are both veterans of SZ and the military- are there any programs at the VA that you feel are not known about/not talked about enough that you think other veterans may be able to benefit from?
r/schizophrenia • u/knowlem • 13h ago
Advice / Encouragement Betraying yourself on antipsychotics
Not too sure how to word this but since I've started antipsychotics I feel like I'm betraying myself or some higher power. I feel like I was some type of antenna that could pick up signals of how the world was feeling- it's affect- I was a perfect observer and now I'm betraying that by becoming less of it.
Now I am what most would describe as better adjusted. I can actively participate in activities a good amount of the time, I don't feel so paranoid, but I feel guilty for it. I had a role and I've squandered it. I can't access the thoughts only I was allowed to see, I can't receive anything from the universe as well. I know this sounds crazy when I phrase it like this but I'm not good enough with words to describe it more precisely.
r/schizophrenia • u/HospitalMindless5492 • 7h ago
Tobacco / Alcohol / Drugs how do you guys react to alcohol?
so, i turn 18 in a few days, and i can drink legally where i currently live at the moment. i wanna go out for drinks, but i’m scared at how i’ll react to alcohol. i used to smoke weed last year, but i stopped because the last few times i smoked, i had terrible reactions, and i’ve been afraid to touch it since then. i’m scared of getting intoxicated now, even with alcohol. can you have really bad experiences like you can with weed? or is it not as intense? would i be okay if i got drunk? i just don’t want to feel how i did when i smoked weed. how do you guys react with alcohol? have you had any bad experiences? i don’t know, i’m just a little afraid.
r/schizophrenia • u/negativ3_cr33p • 2h ago
Opinion / Thought / Idea / Discussion Anyone else have hEDS?
I'm diagnosed with Schizoaffective and have Hypermobile Ehlers-Danlos Syndrome. Just asking to see how common it is in Schizophrenia or other related disorders to have physical disorders like this.
r/schizophrenia • u/RobertFrancisLCSW • 2h ago
Therapist / Doctors Schizophrenia and a pitfall of psychology, on YouTube-
Attached below is todays video link to my “On Conquering Schizophrenia” YouTube channel. Today entails a criticism of psychology. Like all, todays video is ever brief and can be viewed amid all due caution.