r/Assistance REGISTERED 2d ago

EMOTIONAL SUPPORT Sickly child

Hello, right now I need some emotional support. In September I gave birth to the most beautiful son. My daughter (2) is obsessed with him. But he was born with a rare birth defect and other complex health conditions. I got to have him home for only 1.5 weeks before he was admitted to the hospital. He then received surgery and his right lower lobe of his lung was removed. He was unable to be extubated until November. I ended up in Cali for a month with my son in October and my husband lost his job because he had to watch our daughter. He received 4 total surgeries including other operations as well. All as a new born while I was and still am postpartum. We are struggling financially and it's been stressful. He got discharged on Saturday and I cried with joy. Only for them to have rushed him out. RT didn't see him, no one listened to me and they discharged him sick. Now he's back in the hospital and my Christmas, instead of it being with my husband and both my kiddos watching movies and drinking cocoa, will be partially spent in the hospital. Just as my thanksgiving and Halloween. My friends all dropped after this pregnancy, we are at the point that my husband may have to rejoin the military just to allow us to continue living safely. No jobs are responding to our resumes. I'm tired, scared my depression is worse, and I just want to sleep for hours until it all fixes itself but I need to pump for my son, cuddle and play with my daughter, and be present. It's so hard. I'm so tired. My soul hurts. I want my baby boy home.

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u/Beatrixkidd-o REGISTERED 1d ago

This sounds very stressful and overwhelming. I’m so sorry you all are going through this. I don’t have anything to offer but an open ear if you ever need someone to talk to not sure what part of California you’re in, but I’m in California and I gave birth in March of last year from one mom to another you are a superhero 🫶

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u/CaramelRibbons REGISTERED 1d ago

Luckily we are back in our home state now, but it was really difficult while I was there as I was there alone. I found joy in the food though so it kept me going. I was in Palo Alto so we are having huge financial issues just to stay afloat as the breastfeeding mom cards there aren't enough to eat all the needed meals. It was so stressful.

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u/Beatrixkidd-o REGISTERED 1d ago

It sounds super stressful. I can’t imagine. It sounds like the hardest part of the storm is coming to an end. So strong!

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u/CaramelRibbons REGISTERED 1d ago

It really is, we just have to wait for him to dishcharge again and then HOPEFULLY they did it right this time. After that, it's just waiting for him to slowly lose the medical devices and be a healthier baby

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u/Beatrixkidd-o REGISTERED 1d ago

I’m sure this time will be better results. Poor baby babies should not have to go through anything like that. They’re so precious and so innocent