Sickly child

[u/CaramelRibbons]

Hello, right now I need some emotional support. In September I gave birth to the most beautiful son. My daughter (2) is obsessed with him. But he was born with a rare birth defect and other complex health conditions. I got to have him home for only 1.5 weeks before he was admitted to the hospital. He then received surgery and his right lower lobe of his lung was removed. He was unable to be extubated until November. I ended up in Cali for a month with my son in October and my husband lost his job because he had to watch our daughter. He received 4 total surgeries including other operations as well. All as a new born while I was and still am postpartum. We are struggling financially and it's been stressful. He got discharged on Saturday and I cried with joy. Only for them to have rushed him out. RT didn't see him, no one listened to me and they discharged him sick. Now he's back in the hospital and my Christmas, instead of it being with my husband and both my kiddos watching movies and drinking cocoa, will be partially spent in the hospital. Just as my thanksgiving and Halloween. My friends all dropped after this pregnancy, we are at the point that my husband may have to rejoin the military just to allow us to continue living safely. No jobs are responding to our resumes. I'm tired, scared my depression is worse, and I just want to sleep for hours until it all fixes itself but I need to pump for my son, cuddle and play with my daughter, and be present. It's so hard. I'm so tired. My soul hurts. I want my baby boy home.

[u/AssistanceMods]

Hi all. This is an automated and general reminder to all that this post is an EMOTIONAL ASSISTANCE post, not a Request. Please don't request, offer or accept financial or material assistance on this post. Thank you and good luck!

u/CaramelRibbons, if you're in emotional distress, you can find lots of more targeted subreddits and resources in this list.

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[u/okayfriday]

Your son knows your love; your daughter feels your presence. You are enough, even when it feels like you’re running on empty. 💜

[u/nerdrific]

Hugs to you

[u/Mistigeblou]

Hugs to you momma bear. You're a fighter and will get through this so will your little baby bears.

12 years ago was in a very similar situation with a 6 week old getting his 4th operation of his life. Feeling shi....y about everything and eating toast for Christmas dinner. Now I'm here with 3 wonderful young men and praying a cleaning fairy will come to my house.

You WILL get through this

[u/HotAd9605]

I'm so sorry for everything you are going through. You are strong, you are loved and loving. You are just exhausted and overwhelmed.

Take a moment, take some yoga breaths and if possible please get some sleep.

Merry Christmas

[u/-Stymee-]

You are a great mother! I can sense from your post, both you and your husband care very deeply for your kids. You've made all the right moves so far.

Don't worry about the job or even money at this point, those can be fixed later.

I'll pray for your sick child and the rest of your family.

Merry Christmas 🎄 !!!

[u/TurtlesBeSlow]

I pray God puts His hand on your son and provides you with the restorative rest you need. You and your husband are both doing what you need to be doing. I feel the love you have for each other and your children through your words. Let God carry you sweetie. ❤️

[u/cleverlywicked]

I’m so sorry for what you are going through. I will be praying for you and your family. Sending you hugs!

[u/Snapdragon_4U]

I am so sorry you’re going through this. Give yourself some grace. This is so much in such a short time. I wish I knew what to say to give you comfort.

[u/antiquesoftware8]

Things will improve, you’re doing great, especially with all things considered ❤️

[u/AmbieSweetz]

Hugs! You’re a great Mom, and doing everything to take care of your family. Don’t give up, you got this… baby boy needs you! ❤️

[u/Beatrixkidd-o]

This sounds very stressful and overwhelming. I’m so sorry you all are going through this. I don’t have anything to offer but an open ear if you ever need someone to talk to not sure what part of California you’re in, but I’m in California and I gave birth in March of last year from one mom to another you are a superhero 🫶

[u/CaramelRibbons → u/Beatrixkidd-o]

Luckily we are back in our home state now, but it was really difficult while I was there as I was there alone. I found joy in the food though so it kept me going. I was in Palo Alto so we are having huge financial issues just to stay afloat as the breastfeeding mom cards there aren't enough to eat all the needed meals. It was so stressful.

[u/Beatrixkidd-o → u/CaramelRibbons]

It sounds super stressful. I can’t imagine. It sounds like the hardest part of the storm is coming to an end. So strong!

[u/CaramelRibbons → u/Beatrixkidd-o]

It really is, we just have to wait for him to dishcharge again and then HOPEFULLY they did it right this time. After that, it's just waiting for him to slowly lose the medical devices and be a healthier baby

[u/Beatrixkidd-o → u/CaramelRibbons]

I’m sure this time will be better results. Poor baby babies should not have to go through anything like that. They’re so precious and so innocent

[u/Royal_Tough_9927]

As long as your son is alive , thats the only important thing. You need to reach out to the childrens hospital social worker where your son is at. They will know every resource available to help you. Having a medically fragile child is heartbreaking. You may have to make some hard choices. You are not alone. Please try to find a smile. Goodluck

[u/LeadershipOk3354]

Things will get better. Try to stay positive as much as you can. Everything will work out in the end. Merry Christmas 🎄🎁