r/Trichsters 20d ago

Trichotillomania (Hair-Pulling Disorder) Research

Hi! I am currently working on a research paper to advance our understanding of trichotillomania. Your participation helps medical professionals and scientists develop better forms of treatment for the estimated 200,000 Americans with TTM. The questionnaire is a Google form (approx. 5 min long) that is open to everyone who has/had trichotillomania. The more people who participate, the stronger our research will be, so please feel free to share. Thank you for your time, you are making a difference :)  https://forms.gle/iB958cgTDpPbx5pZ8

82 Upvotes

43 comments sorted by

37

u/Necessary-Arm942 20d ago

Just wanted to say that the support and sheer number of responses I have gotten over the last few hours have been incredible. Thank everyone SO much. I have struggled from trich my whole life and know what it's like to feel lost and ashamed. I'm putting all of my time and energy into this research to try and advance our medical professionals' understanding and knowledge of trichotillomania. Thank you, thank you.

12

u/cheddamama 20d ago

Thank YOU! It’s super amazing that you are putting your skills and efforts towards this - because you could be helping thousands. You’re a freakin’ real one. Good luck with your research!!!

1

u/arielkoby 15d ago

Feeling really grateful I opened reddit today. Thank you so much

12

u/mmairee 20d ago

Done!

8

u/Necessary-Arm942 20d ago

Thank you so much! I sincerely appreciate your response :D

12

u/rrrobins1 20d ago

Done, appreciate you putting this together and I hope you can follow up to this post with any stats or findings from your research with this data. I wish people would do this more.

8

u/caboozalicious 20d ago

Oh yes! Thanks for mentioning this.

OP, I second this! I’d love to see the results, no matter how long it takes you to put it together or package it for dissemination and in what format you choose to use (as a fellow researcher, I wouldn’t expect results overnight).

It’s so heartening to see the incredible response from all of us, and while I’m biased, I think this research is incredibly important and interesting. Just being part of this and the other trich-related subs, I’ve learned so much about the different ways this presents and the myriad triggers, methods, and effects on our looks, feelings of worth, and our quality of life.

9

u/Fluffysnowkitty 20d ago

Love that you’re doing this! 

6

u/Necessary-Arm942 20d ago

Thank you so much :) A lot of people live with trich, and unfortunately there are very few research studies done on it. I really hope to help people with trichotillomania feel recognized and understood, while working on treatment options.

5

u/Mental_Instability69 20d ago

Done!

3

u/Necessary-Arm942 20d ago

Hi there, thanks so much for completing this form. It means the world to me. I can't wait to make some progress in the field of body-focused repetitive behaviors :)

6

u/verdantthorn 20d ago

Done!

4

u/Necessary-Arm942 20d ago

Thank you so much for completing the form! You're really making a difference by helping everyone who lives with trich :) I hope this research brings more awareness to trichotillomania, and teaches our medical professionals about what it is, and the best treatment options.

3

u/verdantthorn 20d ago

If I had a nickel for every former therapist of mine who literally started looking up trich in front of me in shock and confusion at the first appointment, I'd have like 25 cents. Which isn't a lot as money goes, but ultimately it's led me to accept the disorder, manage it as best I can by myself, and just soldier on. The thing is, I don't think it's as rare as they say. We learn to hide our condition like superspies because of the associated shame and social penalties. 200,000 sounds like a lot but I would wager the true number is rather higher. Good luck with your research. It's sorely needed.

4

u/happy_girl888 20d ago

Done - good luck on your research, OP :)

5

u/Necessary-Arm942 20d ago

I very much appreciate it!! Have a wonderful, wonderful day.

5

u/cheddamama 20d ago

Done!

6

u/Necessary-Arm942 20d ago

Thank you so much for your contribution! You're really making a difference--this research is very important to me and your participation will only help advance our understanding of trich :)

5

u/International-Act-19 20d ago

Do you do your research trough some sort of institute like a university or is it for personal purposes? How will you publish the results?

4

u/Lionsdawn 20d ago

Done! Thank you!!!

5

u/Necessary-Arm942 20d ago

Seriously--thank you sooo much for your contribution!

5

u/mafa7 20d ago

Done!

3

u/caboozalicious 20d ago

Another data point for you! Thanks for looking into this.

5

u/Necessary-Arm942 20d ago

Hi! Thanks a ton for completing this form :)

3

u/owl_britches 20d ago

Done- good luck!

3

u/GremmyGoblin 20d ago

Thank you for sharing!

3

u/Lonely-Wasabi-305 20d ago

Done. This is was Great thanks

3

u/brif95 20d ago

Done! ✔️

4

u/kindnessoffensive 20d ago

Done. I hope you get a lot more responses!

7

u/Necessary-Arm942 20d ago

Thank you so much for filling out the form! It means so much to me. I really hope to advance our understanding of trich and help everyone who lives with it :)

2

u/Cindilouwho2 20d ago

Done. Thank you for the work you are doing. It's so amazing. Back in the 70s no one knew what was wrong with me and my parents and grandparents shamed me. My mother has since apologized for doing that. But we've come along way since then, your work pushes it even further to find answers

1

u/Ermahgourd 19d ago

Done :)

1

u/ElleyDM 18d ago

I hope you'll come back and share what you find! Best of luck with your research!

1

u/redditerX75 18d ago

this workbook will give you some therapeutic techniques should be used https://www.amazon.com/Trichotillomania-Workbook-Cognitive-Behavioral-Techniques/dp/B0CR8GCJZW

1

u/Cool-Importance6004 18d ago

Amazon Price History:

Trichotillomania Workbook: Cognitive Behavioral Therapy Techniques to Overcome Hair Pulling Disorder

  • Current price: $25.00 👎
  • Lowest price: $9.99
  • Highest price: $36.26
  • Average price: $17.18
Month Low Price High Price Chart
12-2024 $19.99 $25.00 ████████▒▒
11-2024 $10.79 $25.00 ████▒▒▒▒▒▒
10-2024 $10.79 $25.00 ████▒▒▒▒▒▒
09-2024 $15.21 $36.26 ██████▒▒▒▒▒▒▒▒▒
08-2024 $10.24 $30.00 ████▒▒▒▒▒▒▒▒
07-2024 $10.29 $20.00 ████▒▒▒▒
06-2024 $10.21 $12.99 ████▒
05-2024 $10.14 $12.99 ████▒
04-2024 $10.00 $12.99 ████▒
03-2024 $10.26 $21.05 ████▒▒▒▒
02-2024 $11.99 $11.99 ████
01-2024 $9.99 $10.99 ████

Source: GOSH Price Tracker

Bleep bleep boop. I am a bot here to serve by providing helpful price history data on products. I am not affiliated with Amazon. Upvote if this was helpful. PM to report issues or to opt-out.

1

u/amishhatepage 17d ago

just responded, so glad someone’s trying to find a root cause!

1

u/virginia_woolf 14d ago

Done. Thank you!